• Flying Squid@lemmy.world
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    9 months ago

    The funny thing is we actually considered some sort of brain issue, but according to my neurologist after seeing my MRI, I have a very healthy brain.

    Of course, that doesn’t mean I’m not imagining things. Who knows? Anything could be psychosomatic.

    • Captain Janeway@lemmy.world
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      9 months ago

      Things could be psychosomatic, but I was being sarcastic for a reason. Many people dismiss other’s pain as psychosomatic as a quick way to ignore their needs. I say trust yourself as much as it makes sense to do so.

      • Flying Squid@lemmy.world
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        9 months ago

        Actually, it’s not a pain thing. I’m in no pain from it at all. It’s just a mystery. I dry heave every morning like I have morning sickness (unlikely due to, like, having a penis) and I have been unable to eat solid food since August (I had another six-week bout in March). I live on Ensure and Gatorade. I have had a ton of tests- X-rays, labs, an MRI, a HIDA scan and two EGDs (where they send a scope down your throat). I have had a biopsy of my stomach. I have had my gallbladder removed. Nothing has changed. So I have an appointment at the Mayo Clinic for the end of March (unless someone cancels and I can get in sooner) where hopefully I’ll meet my Doctor House and get this sorted out.

        But there’s no pain and very little discomfort. I feel fine most of the time. I can live a relatively normal life despite this, although obviously I have fairly low energy. I mean it sucks not eating, I’d love to eat. A new Nepalese restaurant opened here. I’ve never even had Nepalese food! I drive by it all the time and look at the pictures outside and think, “wow, I wish I could eat that.” But I can’t. It’s not nausea, it’s a total aversion to food. The smell, the texture, etc. And no hunger ever. My GP described it as similar to anorexia but with a physical cause. We just don’t know what that cause is.

        The only positive is that I’ve lost 70 pounds and am 10 pounds away from my ideal weight. I still look fat, but hey, we can’t have everything. So I do recommend having a mystery illness where you can’t eat if you want to lose weight. It works better than Ozempic!

        • jasondj@ttrpg.network
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          9 months ago

          Not to be too gross, but how’s your poo?

          Have you had Covid (or Covid symptoms) shortly before this started happening? I think the new booster didn’t come out until September.

          • Flying Squid@lemmy.world
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            9 months ago

            It is what you would expect from someone who has a diet low in fiber.

            And I had COVID in between the bouts of not eating.

            Also, no offense meant here, but I really do not want medical advice over the internet from people I don’t know.